Policy Regarding Use of Dup15q Alliance Trademarks
The trademarks, logos, and service marks (“Marks”) displayed on this website, and related websites belonging to Dup15q Alliance, including the Dup15q Alliance logo, among others, are trademarks of the Dup15q Alliance, are the property of Dup15q Alliance, and are protected. Their uses are restricted to those programs and events sponsored by Dup15q Alliance, and Dup15q Alliance trademarks may not be used for personal financial gain. Use of the Marks is prohibited without the express written consent of Dup15q Alliance. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of Dup15q Alliance.
At times, Dup15q Alliance may grant limited-use licensing agreements to those individuals or groups who wish to help further the mission of Dup15q Alliance. Solely at the discretion of Dup15q Alliance, limited permission for use of Dup15q Alliance’s Marks may be granted for those projects which provide a substantial benefit to Dup15q Alliance or the chromosome 15q duplication syndrome community in general. For consideration, please submit, in writing, a letter of intent, which details how the Dup15q Alliance’s Marks will be used, the length of time they will be used, and the benefit of the project to Dup15q Alliance or the chromosome 15q duplication syndrome community to info@dup15q.org at least 45 days prior to launch.
Letters of intent may also be sent to: Dup15q Alliance, PO Box 674, Fayetteville, NY 13066, or send an e-mail to info@dup15q.org.
Dup15q Alliance, P.O. Box 674, Fayetteville, NY 13066 USA
855-dup-15qa info@dup15q.org
Announcing the First Dup15q Center Located in Boston, Massachusetts
The Dup15q Center at Massachusetts General Hospital in Boston is a multidisciplinary clinic for children and adults with duplications of chromosome 15q. All individuals will be evaluated first in the Neurology/Epilepsy Clinic and then referred to various doctors experienced in Dup15q as needed in the areas of Sleep Medicine, Gastroenterology, Genetics, Neuropsychology and Psychiatry. Families traveling from out of town will be interviewed prior to the visit in order to schedule the proper evaluations. Available services include inpatient EEG monitoring, sleep studies and dietary therapy for epilepsy. Families can call 617-726-6540 to set up an appointment.
Thank you to Dr. Ronald Thibert and all at Massachusetts General Hospital for creating this Center of Excellence.
