International Resources for Chromosome 15q Duplications
Dup15q Alliance is pleased to help European families find language and country specific resources.
Dup15q Alliance sont plu d'aider des familles européennes trouvent la langue et le pays ressources spécifiques.
Dup15q Alliance werden erfreut, europäischen Familien zu helfen, Sprache zu finden, und Land spezifische Ressourcen.
Dup15q Alliance è lieta di aiutare le famiglie europee a trovare informazoni nella loro lingua e risorse specifiche per il loro paese.
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French
Français parler les familles peuvent contacter Hélène Frisch à helene.frisch@arom-productions.com.
German
Deutsch sprechende Familien können Christian Reiter unter lissypapa@yahoo.com kontaktieren.
Italian
Il contatto per famiglie italiane:
“nonsolo15” associazione per la ricerca e il sostegno di familiari e amici di persone affette da sindrome invdup15 (idic15) onlus.
tel.: (+39) 0575 583950
informazioni da scaricare: unique: “idic(15)”
"Vivere con bambini affetti da idic 15"
Norway/Scandinavia
Families in Norway and Scandinavia can contact Ragnhild Eikeland at ragnhild.eikeland@lyse.net
Nederland
Families in Nederland kunnen contact opnemen met Antal de Waij via antaldewaij@yahoo.com
Spanish
Que es el Sindrome de Duplicacion del cromosoma 15q?
United Kingdom / International Support
UNIQUE provides support to families affected by chromosome 15q duplications and other rare chromosome disorders in the U.K. and around the world.
European Family Listserve
Welcome, Wilkommen, Bienvenue, Benvenuto.
This group is for European families who have a family member with chromosome 15q uduplication syndrome (duplication 15)(parents/care givers/grandparents/siblings etc). This site has been set up to chat with other European idic 15 families and any European language can be spoken. We would like to share information with each other and offer support. We would like to hopefully hold local meetings/days out in our native countries and visit our idic 15 friends in other European countries. This site has been set up by 3 EU families from Italy, Germany and the UK.
Dup15q Alliance P.O. Box 674, Fayetteville, NY 13066 USA
855-dup-15qa info@dup15q.org
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The trademarks, logos, and service marks (“Marks”) displayed on this website, and related websites belonging to Dup15q Alliance, including the Dup15q Alliance logo, among others, are trademarks of the Dup15q Alliance, are the property of Dup15q Alliance, and are protected. Their uses are restricted to those programs and events sponsored by Dup15q Alliance, and Dup15q Alliance trademarks may not be used for personal financial gain. Use of the Marks is prohibited without the express written consent of Dup15q Alliance. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of Dup15q Alliance.
At times, Dup15q Alliance may grant limited-use licensing agreements to those individuals or groups who wish to help further the mission of Dup15q Alliance. Solely at the discretion of Dup15q Alliance, limited permission for use of Dup15q Alliance’s Marks may be granted for those projects which provide a substantial benefit to Dup15q Alliance or the chromosome 15q duplication syndrome community in general. For consideration, please submit, in writing, a letter of intent, which details how the Dup15q Alliance’s Marks will be used, the length of time they will be used, and the benefit of the project to Dup15q Alliance or the chromosome 15q duplication syndrome community to info@dup15q.org at least 45 days prior to launch.
Letters of intent may also be sent to: Dup15q Alliance, PO Box 674, Fayetteville, NY 13066, or send an e-mail to info@dup15q.org.
